在意大利实施多发性硬化症患者的近距离护理:StayHome项目的自下而上的方法
M Filippi1,2,3, P Gallo4,5, C Gasperini6
1Neurology Unit and Multiple Sclerosis Center, Neurorehabilitation Unit, and Neurophysiology Service, IRCCS San Raffaele Scientific Institute, Via Olgettina, 60, 20132, Milan, Italy. filippi.massimo@hsr.it.
Journal of neurology
|January 8, 2025
概括
这项研究引入了意大利多发性硬化症 (MS) 的新近距离护理模式,改善了患者护理组织. 该模型由专家验证,并在中心进行试点测试,增强了MS途径管理和患者的结果.
科学领域:
- 神经学 神经学
- 医疗保健管理的管理
- 公共卫生 公共卫生
背景情况:
- 多发性硬化症 (MS) 在意大利影响大约137,000人.
- 目前的医疗保健模式存在组织挑战,原因是MS患者的近距离护理有限.
- 意大利医疗保健领域的近期发展需要创新的医疗服务模式.
研究的目的:
- 在意大利定义和验证多发性硬化症 (MS) 的近距离护理模式.
- 让150多名医疗保健利益相关者参与该模型的开发和实施.
- 建立一个框架,以改善多发性硬化患者的治疗途径和组织效率.
主要方法:
- 途径分析和专家采访,绘制多发性硬化患者的旅程.
- 在14个中心开发和试验近距离护理模型和成熟模型框架.
- 德尔菲方法用于验证成熟度模型维度和关键绩效指标 (KPIs).
主要成果:
- 试点中心在实施行动计划后,在成熟度模型中表现出更好的定位.
- 建立了一个全面的监测框架,包括验证的过程,结果和患者体验指标.
- 成熟度模型的维度和关键关键指标通过专家的共识来改进.
结论:
- 这项研究表明了自下而上的方法在解决意大利MS护理中的组织挑战方面的有效性.
- 开发的综合模型为改善多发性硬化症患者途径提供了可扩展的解决方案.
- 该模型有可能在各种护理途径和医疗保健环境中复制.
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