在儿科瘤学中测量耻辱:对三个全球网站的横截面分析
Lara E Counts1, Robin S Tanner2, Yichen Chen1
1St Jude Children's Research Hospital, Memphis, TN.
JCO global oncology
|January 8, 2025
概括
儿童癌症的耻辱性很高,患者和护理人员报告之间存在显著差异. 需要采取新的具体措施,以准确评估癌症儿童的耻辱感.
科学领域:
- 在瘤学瘤学.
- 心理社会瘤学
- 跨文化心理学 跨文化心理学
背景情况:
- 围绕癌症的耻辱导致恐惧,羞耻和延迟寻求护理.
- 儿童癌症的耻辱受文化,语言和社会因素的影响.
- 现有的耻辱措施需要适应儿科患者群体.
研究的目的:
- 探索在不同国际环境中诊断儿科癌症的耻辱感.
- 调整和评估两个用于青少年和护理人员的耻辱措施.
- 评估在儿科瘤学中标记尺度的相关性和适用性.
主要方法:
- 与耻辱相关的社会问题 (SSP) 和慢性疾病的耻辱尺度 (SSCI-8) 的跨文化适应和翻译措施.
- 以阿拉伯语,西班牙语和肖纳语进行适应措施的试点测试和代修订.
- 对约旦,危地马拉和津巴布韦的耻辱程度和患者护理人员一致性的探索性分析.
主要成果:
- 需要进行广泛的调整,以确保耻辱措施的上下文相关性.
- 与以前的研究相比,调整后的测量结果显示,儿童癌症患者和护理人员的耻辱程度较高.
- 在患者和护理人员的代理报告之间,在两种耻辱度表中都观察到显著的分歧.
结论:
- 调整后的测量结果显示,儿童癌症的污名化程度很高,患者和护理人员报告之间的一致性很差.
- 直接患者对耻辱的评估至关重要,避免依赖代理措施.
- 建议专门针对儿童癌症制定文化敏感的污名化措施.
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