一种关系式的方法,与痴呆症患者和痴呆症患者共同创建提前护理规划:一个叙事研究
Tharin Phenwan1, Judith Sixsmith2, Linda McSwiggan2
1School of Health Sciences, University of Dundee, Dundee, UK. tphenwan001@dundee.ac.uk.
BMC palliative care
|January 9, 2025
概括
对于痴呆症患者 (PwD) 的提前护理计划 (ACP) 最好在整个疾病期间启动,而不仅仅是在早期. 涉及值得信赖的个人确保了普华永道的发展.
科学领域:
- 老年学是一门学科.
- 痴呆症护理 痴呆症护理 痴呆症护理
- 提前护理计划 提前护理计划
背景情况:
- 痴呆症 (PwD) 患者的提前护理计划 (ACP) 由于认知能力下降和遗忘症而带来沟通挑战.
- 目前的非洲和非洲国家和地区 (ACP) 时机建议可能无法完全捕捉PWD不断变化的需求或偏好.
- 早期的ACP启动可能发生在PWD准备就绪之前,从而导致低于最佳的结果.
研究的目的:
- 探索PWD不断变化的需求及其社会背景,影响了ACP的启动和修订.
- 确定启动和修订ACP与PWD和PWD的最佳时间.
主要方法:
- 在线和电话采访13名PWD和23名家庭护理人员.
- 利用叙事分析来识别关键模式和主题.
- 通过加入痴呆症研究 (JDR) 平台招募参与者.
主要成果:
- 随着独立性下降,PWD的需求演变为与家庭共同构建的需求.
- 在ACP中,启动和修订往往是在可信赖的关键人员提供关系支持的情况下进行的.
- 有效的ACP启动和修订可以发生在整个痴呆过程中的各种"触发点",而不仅仅是在疾病的早期.
结论:
- ACP for PwD受共同构建需求和社会背景不断变化的影响.
- 在老年痴呆症的整个过程中确定"触发点"对于及时的非洲和非洲国家和地区讨论至关重要.
- 建议采取一种涉及关键支持人员的关系式方法,以便在整个疾病轨迹中有效治疗PWD.
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