生活在一个泡中,有着深刻的困难 - - 父母对极度早产幸存者的经历
Malin Hansson1,2, Aldina Pivodic3,4, Chatarina Löfqvist1,3
1Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Acta paediatrica (Oslo, Norway : 1992)
|January 10, 2025
概括
极度早产婴儿的父母面临着重大挑战,尽管新生儿护理是模范性的,但他们经常感到孤立. 改善支持系统和护理过渡对于家庭福祉至关重要.
科学领域:
- 新生儿医学 新生儿医学
- 儿科 儿科 儿科
- 家庭健康 家庭健康
背景情况:
- 极度早产婴儿 (怀孕24周前出生) 对家庭来说是一个独特的挑战.
- 父母的经验和感知到的资源对家庭的健康连续性有重大影响.
- 了解父母的困难对于制定有效的支持策略至关重要.
研究的目的:
- 分析极度早产婴儿的父母所面临的挑战.
- 研究被认为是资源对家庭健康的缓冲效应.
- 在家庭的医疗保健旅程中识别障碍和支持需求.
主要方法:
- 通过开放式调查问题从70名怀孕24周前出生的婴儿的父母那里收集了定性数据.
- 诱导性内容分析用于识别父母体验中的主题和模式.
- 应用到环境资源和赤字的salutogenic理论.
主要成果:
- 父母们报告说,新生儿护理非常出色,但却面临着严重的困难,被描述为"生活在一个泡中".
- 挑战包括多样化获得支持和参与,管理复杂的医疗需求,以及护理层次之间的重大障碍.
- 父母经历了影响他们整体幸福感的赤字.
结论:
- 改善支持系统和应对挑战对于早产婴儿家庭至关重要.
- 加强医疗保健提供者和家庭之间的合作至关重要.
- 识别和克服护理障碍,以及全面的支持服务,可以减轻对家庭健康结果的不利影响.
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