帕金森病和照顾者的角色,需求和支持需求和经验:一个全面的审查
Margaret L Longacre1, Lacey Roche1, George C Kueppers2
1Department of Public Health, College of Health Sciences, Arcadia University, 241 Easton Hall, 450 S. Easton Rd., Glenside, PA 19038, USA.
Healthcare (Basel, Switzerland)
|January 10, 2025
概括
帕金森病患者 (PwP) 的家庭照顾者面临着严重的身体,精神,社会和财务压力. 尽管面临挑战,但有些人在照顾中发现了好处,旨在保持普华永道的尊严和舒适.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 护理人员研究 护理人员研究
背景情况:
- 帕金森病 (PwP) 影响着越来越多的人口,增加了对有效护理人员支持的需求.
- 家庭护理人员在支持帕金森病患者方面发挥着至关重要的作用.
研究的目的:
- 综合家庭护理人员支持帕金森病患者的经验.
- 确定与帕金森病护理相关的挑战和好处.
主要方法:
- 在遵循PRISMA指南的范围内进行文献审查.
- 在PubMed,EBSCO和Ovid数据库中进行了搜索 (2019年1月至2024年1月).
- 包括专注于美国护理人员观点的研究.
主要成果:
- 包括31篇文章,主要是描述性研究 (n=26).
- 常见的护理角色包括个人护理协助.
- 照顾者报告了严重的身体,精神,社会和财务压力,以及寻求利益和努力确保普华永道的尊严.
结论:
- 对帕金森病患者的照顾提供了多方面的挑战和一些好处.
- 未来的研究应该加强对护理人员人口统计 (种族,性别) 的报告,并调查护理人员的压力和健康结果.
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