角色的演变:青少年关于与父母和医疗保健提供者共享决策的观点
Chelsey B Anderson1, Isabella K Pallotto2, Lindsay Dominguez3
1James M. Anderson Center for Health Systems Excellence (CB Anderson, L Dominguez, MA Ammon, A Carle, and EA Lipstein), Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
Academic pediatrics
|January 11, 2025
概括
患有慢性疾病的青少年希望在医疗决策中发挥积极作用,并考虑他们的独特观点和价值观. 了解这些不断变化的需求可以改善共享决策 (SDM) 以提高医疗保健参与度.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 青少年医学 青少年医学
- 健康心理学 心理健康心理学
背景情况:
- 与青少年共同决策 (SDM) 提出了独特的挑战.
- 了解青少年的观点对于在儿科护理中有效的SDM至关重要.
- 患有慢性健康状况的青少年需要在医疗决策方面提供量身定制的支持.
研究的目的:
- 描述患有慢性健康状况的青少年对共享医疗决策的观点.
- 探索青少年如何看待他们在与家长和医疗保健提供者的决策中的角色.
- 确定影响青少年参与SDM的关键主题.
主要方法:
- 通过视频会议与患有慢性疾病的青少年 (12-17岁) 进行半结构化的定性访谈.
- 采访重点是决策经验,并探讨了SDM的概念.
- 使用转录的采访的归纳和演编码进行主题分析.
主要成果:
- 十六名青少年参与;分析显示SDM的4个关键主题.
- 主题包括:定义青少年的角色,理解复杂的信息,分享独特的观点,并达成共识.
- 青少年报告说,随着越来越多的独立性和理解,他们越来越多地参与复杂的决策.
结论:
- 患有慢性疾病的青少年在共同决策中经历了不断变化的角色.
- 数据可以为定制的SDM方法提供信息,以满足青少年的需求.
- 关键策略包括积极参与,个性化沟通和纳入青少年价值观.
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