牛皮关节炎的重要因素:患者和临床医生的观点的比较
Philip J Mease1, M Elaine Husni2, Evan Siegel3
1Providence Swedish Medical Center, Seattle, Washington.
ACR open rheumatology
|January 13, 2025
概括
牛皮关节炎 (PsA) 患者和临床医生的优先事项显示出一些一致性,但也存在关键差异. 患者强调护理准入和生活影响超出了身体症状,突出了沟通差距.
科学领域:
- 类风湿病学 类风湿病学
- 患者报告的结果
背景情况:
- 牛皮关节炎 (PsA) 显著影响患者的生活.
- 了解患者的观点对于有效的管理至关重要.
研究的目的:
- 探索患者对PsA的体验.
- 为了比较患者和临床医生对PSA维度的优先级.
主要方法:
- 使用焦点小组和Delphi练习的混合方法方法.
- 确定了51个对患者重要的PsA属性.
- 患者和临床医生评价了属性的重要性.
主要成果:
- 患者和临床医生同意优先考虑关节炎,疼痛,疲劳和身体功能.
- 患者优先考虑获得护理,日常活动和未来的不确定性.
- 临床医生优先考虑疾病的表现,并发症和结构损伤.
结论:
- 患者和临床医生的PsA优先级之间存在显著的不一致.
- 患者的担忧超越了身体症状,包括心理社会方面.
- 需要改善患者与临床医生的沟通和以患者为中心的研究.
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