与患者分享基因组瘤测序结果:先进实践瘤学提供者的经验
Lisa Stewart1, Anne Floyd Koci1, Tracy Brock Lowe1
1From Clemson University, Clemson, South Carolina.
Journal of the advanced practitioner in oncology
|January 13, 2025
概括
先进实践提供者 (APP) 需要更多的教育,以向癌症患者解释复杂的分子分析 (MP) 结果. 量身定制的患者教育工具对于改善理解和治疗至关重要.
科学领域:
- 在瘤学瘤学.
- 基因组医学是基因组医学.
- 患者教育 患者教育
背景情况:
- 基因组瘤测序或分子分析 (MP) 是瘤学的标准,用于识别可向的变化.
- 了解MP结果对于患者接受向癌症治疗至关重要.
- 先进实践提供者 (APP) 经常与患者讨论MP结果.
研究的目的:
- 探索APP在与成年癌症患者讨论分子分析结果方面的经验.
- 识别沟通复杂的基因组信息的挑战和需求.
主要方法:
- 使用与APP进行虚拟半结构面试的定性研究.
- 参与者通过高级实践者血液学和瘤学学会 (APSHO) 招募.
- 数据分析涉及持续的比较分析,采用开放式,轴向式和选择性编码.
主要成果:
- 13个APP参与了这项研究.
- APP主要通过工作经验来学习解释和解释MP的发现.
- 确定了关于MP结果的有效患者教育的障碍.
结论:
- 应用程序需要额外和持续的教育,以有效地传达复杂的MP结果.
- 迫切需要针对MP发现,患者偏好和识字水平量身定制的患者教育工具.
- 改善MP结果的沟通可以提高患者的理解,并促进有针对性的治疗选择.
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