主要胆道胆道炎患者的症状报告:使用交互式应用程序检测症状的负担更高
Jimmy Daza1, Nathally Espinosa-Montagut2, Achim Kautz3
1Division of Hepatology, Division of Clinical Bioinformatics, Department of Medicine II, Medical Faculty Mannheim, Heidelberg University, Mannheim, Germany, jimmy.daza@medma.uni-heidelberg.de.
Digestive diseases (Basel, Switzerland)
|January 14, 2025
概括
初级胆道胆炎 (PBC) 患者会出现显著的症状,如疲劳和关节疼痛. 一个数字症状追踪器应用程序改善了监测和参与,显示了更好的PBC管理的潜力.
科学领域:
- 肝病学 肝病学是一种肝病学.
- 自免疫性疾病 自免疫性疾病
- 数字健康数字健康
背景情况:
- 初级胆道胆炎 (PBC) 是一种慢性自身免疫性肝病,其特征是胆道的破坏.
- 症状显著影响患者的生活质量 (QoL).
- 数字症状追踪器为增强患者监测和护理提供了潜力.
研究的目的:
- 为了重新评估PBC患者的症状负担,使用定制的数字症状追踪器应用程序.
- 评估应用程序的可用性,有效性和对疾病管理和质量生活的影响.
主要方法:
- 在REDCap开发的症状追踪应用程序被患者使用了4周.
- 收集的数据包括PBC症状和药物使用.
- 使用R.软件进行了描述性统计和千平方测试.
主要成果:
- 在90名完成者中,疲劳 (87.8%) 和关节疼痛 (80%) 是最常见的症状.
- 集中精力困难,腹部不适和Sicca症状也很常见.
- 跨年龄或性别群体之间没有发现症状负担的显著差异.
结论:
- 预先结血病与严重的症状负担有关,特别是疲劳和关节疼痛.
- 数字症状追踪器显示了改善PBC监测和患者参与的潜力.
- 需要进一步的研究来评估PBC管理中数字工具的长期益处.
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