慢性病患者参与生活的患者报告结果措施:系统性审查
Anastasia Hughes1,2, Angela Ju1,2, Rosanna Cazzolli1,2
1Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Clinical kidney journal
|January 15, 2025
概括
慢性病 (CKD) 患者报告的终结措施 (PROMs) 对于慢性病 (CKD) 的生命参与有很大差异. 对于CKD患者来说,很少有PROM得到验证,这凸显了对一致的评估工具的需求.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 患者报告的结果
- 医疗保健服务研究 医疗服务研究
背景情况:
- 慢性病 (CKD) 显著影响患者的生活,限制他们参与日常活动,甚至在需要置换疗法 (KRT) 之前.
- 评估"生活参与"对于了解CKD患者的体验至关重要.
- 现有的患者报告结果措施 (PROMs) 缺乏标准化和验证.
研究的目的:
- 识别和描述用于评估CKD阶段1-5不需要KRT的患者生活参与的PROM.
- 评估这些PROM的内容和心理特征.
主要方法:
- 在主要数据库 (MEDLINE,Embase,PsycINFO,CINAHL) 进行了系统的文献搜索,截至2023年2月.
- 报告非透析CKD患者参与生命的研究分析了PROM特征,评估尺寸和心理测量验证.
- 综合了来自114项研究的数据.
主要成果:
- 确定了41个不同的PROM,只有6个由作者开发,12个专门针对生活参与.
- 最常用的PROM是36项简短形式的健康调查 (SF-36) 和脏疾病生活质量简短形式 (KDQOL-SF).
- 虽然评估了各种生活参与领域 (身体,社会,休,工作,自我照顾),但没有一个PROM是针对CKD的,只有四个报告在CKD人群中得到验证.
结论:
- 目前PROMs用于评估CKD生活参与的环境是多样化的,并且缺乏针对这一患者群体的具体验证.
- 需要一个经过验证,标准化的PROM来一致和有意义地测量全球所有CKD患者的生活参与度.
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