管理期望:了解父母对孩子严重疾病的看法
Katherine Patterson Kelly1, Kim Mooney-Doyle2, Mia Waldron3
1Children's National Hospital, Washington, DC, USA.
Journal of family nursing
|January 15, 2025
概括
患有严重疾病的孩子的父母平衡希望与现实. 他们使用认知和行为策略来保持积极和现实的前景,影响他们的育儿方法.
科学领域:
- 儿科心理学 儿科心理学
- 家庭健康 家庭健康
- 童年疾病 童年疾病
背景情况:
- 养育患有严重疾病的孩子带来了巨大的情感和实际挑战.
- 关于家长应对问题的现有研究包括保持积极和现实的前景的主题.
- 需要进一步的探索,以了解这些父母应对机制的细微差别.
研究的目的:
- 通过分析关于父母观点的有根据的理论,扩展Hinds和同事的"好父母"主题.
- 识别家长用来保持积极和现实的观点的认知和行为策略.
- 为了深入了解父母的期望如何影响儿童慢性疾病的育儿.
主要方法:
- 在英语期刊上发表的基础理论研究的系统审查.
- 纳入标准:2006年1月至2021年4月,相关于父母对儿童严重疾病的看法.
- 对18项选定的研究进行分析,以综合有关父母认知和行为努力的发现.
主要成果:
- 父母使用认知策略 (例如,希望,避免消极思想) 和行为行动 (例如,监控,寻找信息) 来保持积极的前景.
- 现实的前景包括承认疾病的严重程度,治疗副作用,以及使孩子的生活正常化所面临的挑战.
- 同时保持积极和现实的前景使父母能够保持希望,同时为生命结束的场景做准备.
结论:
- 父母对疾病发展轨迹和结果的期望极大地影响了育儿行为和认知过程.
- 积极和现实的前景之间的相互作用对于有效的重病儿童的育儿至关重要.
- 这项研究提供了对家长在儿科慢性和重症监护机构的应对和适应的更细致的理解.
相关概念视频
01:27Nursing Ethical Principles II
932
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
932
01:30Asthma-IV: Nursing Management
3.0K
The nursing management of asthma is a comprehensive approach that relies heavily on the expertise and dedication of healthcare professionals. It involves thorough assessment, accurate diagnosis, strategic planning, effective implementation, and diligent evaluation. By meticulously following this step-by-step process, healthcare professionals play a crucial role in providing the best possible care and treatment for patients with asthma, enhancing their overall health and well-being.
First, in...
First, in...
3.0K
01:16Kidney Transplant III: Nursing Management
3
Postoperative Nursing Management for Kidney Transplant PatientsPostoperative nursing management care includes monitoring the surgical site, encouraging early movement, and promoting lung health through breathing exercises. Nurses also administer prescribed medications like H2-blockers, such as famotidine, or proton pump inhibitors, like omeprazole, to help prevent gastrointestinal ulcers and bleeding. Fungal infections in the mouth and bladder can result from immunosuppressive and antibiotic...
3
01:17Classification of Illness
7.4K
The meaning of illness is individualized to each person who experiences an alteration in health. In contrast, disease is a medical term indicating a pathological change in the structure and function of the body or mind. It is a condition that has specific symptoms and boundaries.
An illness is a response to a disease in which the person's level of functioning is changed compared with a previous level. The general classification of illness includes acute and chronic.
Acute illness is severe...
An illness is a response to a disease in which the person's level of functioning is changed compared with a previous level. The general classification of illness includes acute and chronic.
Acute illness is severe...
7.4K
01:11Guidelines for Writing Outcome
2.7K
When developing expected outcomes for a patient care plan, the nurse should adhere to the following recommendations:
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...
2.7K
01:20Lazarus's Cognitive Appraisal Theory
189
Cognitive psychologist Richard Lazarus proposed the cognitive-mediational theory of emotions, which emphasizes how individuals' assessments of stressors significantly affect their experience of stress. According to Lazarus, the stress response is determined by a two-step appraisal process: primary appraisal and secondary appraisal. These cognitive appraisals help individuals evaluate the potential impact of a stressor and determine the adequacy of their coping resources.
Primary Appraisal:...
Primary Appraisal:...
189