健康数据:区域化访问是建立安全,透明和创新的国家健康数据库的首要挑战
Daniel Szeftel1, Vianney Jouhet2, Gilles Duluc2
1Sêmeia, 75010 Paris, France.
概括
法国正在导航健康数据的法律变化,平衡创新与公民权利. 有效的数据再利用需要国家-地方协调和用户对欧洲目标的信任.
科学领域:
- 卫生法律和政策卫生法律和政策
- 数据治理数据治理
- 生物信息学是一种生物信息学.
背景情况:
- 法国在个人数据保护方面正在经历多年的法律和组织转型.
- 国家框架正在适应欧洲法规和医疗保健的国际竞争.
- 从1978年"数据保护法"到2019年"医疗保健系统转型法"的改革,加强了数据保护,并使创新用途成为可能.
研究的目的:
- 探索有效的医疗数据再利用,同时维护公民权利.
- 将国家和欧洲的野心与医疗保健系统的实际现实相协调.
- 通过数据确定改善护理质量的战略,促进创新,提高法国医疗保健系统的竞争力.
主要方法:
- 分析法国医疗保健数据管理的法律和组织改革.
- 审查欧洲法规,如人工智能法案 (2024) 和欧洲健康数据空间 (2024).
- 审查对2019年改革的影响研究,强调患者和专业需求以及当地倡议.
主要成果:
- 加强个人数据保护要求,以及新的数据利用途径.
- 建立一个安全,透明和有竞争力的卫生数据共享和使用框架.
- 承认当地倡议和用户需求对于医疗保健系统转型至关重要.
结论:
- 有效的医疗数据再利用取决于平衡创新与基本权利.
- 国家和地方层面之间的协调是至关重要的,除了维护用户的信任.
- 实现科学和经济数据利用的国家和欧洲目标需要综合战略.
关键词:
群体组合 (cohort) 是一个群体.电子健康战略 电子健康战略资金 资金 资金 资金健康数据 卫生数据卫生数据仓库的健康数据仓库.登记处 登记处 登记处 登记处在SNDS中,SNDS是SNDS.更多相关视频
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