"他们知道同样的斗争":对患有慢性移植与宿主疾病的患者群体应对技能的干预的看法
Joely A Centracchio1,2, Daniel G Yang3, Annemarie D Jagielo3
1Massachusetts General Hospital, Boston, MA, USA. jcentracchio@miami.edu.
概括
这项研究表明,群体应对技能的干预改善了慢性移植与宿主疾病 (cGVHD) 幸存者的生活质量,通过促进联系和提高自我有效性来管理他们的病情.
科学领域:
- 血液学 血液学 血液学
- 在瘤学瘤学.
- 心理学 心理学 心理学
背景情况:
- 慢性移植对宿主疾病 (cGVHD) 显著影响全源造血细胞移植 (HCT) 幸存者.
- 幸存者研究在很大程度上忽视了患有cGVHD的HCT接受者的独特需求.
- 需要采取干预措施来解决cGVHD的身体和心理后果.
研究的目的:
- 评估多学科小组应对技巧干预 (Horizons) 对患有cGVHD的HCT幸存者的可行性和初步有效性.
- 质量评估"地平线"干预对参与者的感知影响.
- 了解患者的动机,感知到的好处和干预的影响.
主要方法:
- 一组19名Horizons干预参与者完成了半结构化音频录制的退出访谈.
- 使用快速分析来对参与者的反进行分类.
- 在三个领域分析了反:动机,感知好处和参与的影响.
主要成果:
- 参与者的动机包括与其他cGVHD幸存者建立联系,并帮助未来的患者.
- 确定的主要好处是社会联系,学习cGVHD,并获得应对策略.
- 影响包括加强与护理团队沟通的授权,增强验证,以及对个人目标的更新动机.
结论:
- 参与者重视小组环境与同龄人建立联系,并培养管理cGVHD的技能.
- "地平线"干预措施对参与者的生活质量产生了积极影响.
- 这些发现强调了基于证据的干预措施的必要性,以提高HCT接受者的生存率.
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