与痴呆症实践社区互动:对技能,知识,网络和获得支持的影响
Clarissa Giebel1,2, James Watson1,2, Megan Polden1,2,3
1Department of Primary Care & Mental Health, University of Liverpool, Liverpool, UK.
概括
利物浦痴呆和衰老研究论坛成功地连接了各种利益相关者,增强了网络和知识. 未来的努力应该集中在增加与会者的多样性,并确保新参与者定期加入.
科学领域:
- 老年学和痴呆症研究研究
- 公共卫生与社区参与
- 定性研究方法论 定性研究方法论
背景情况:
- 有效的研究进步需要不同利益相关者之间的合作.
- 利物浦痴呆和衰老研究论坛 (成立于2019年) 作为一个公共/专业的实践社区.
- 该论坛通过活动将痴呆症患者,护理人员,卫生专业人员,第三部门代表和专员联系起来.
研究的目的:
- 质量地探索利益相关者的经验和参与论坛的影响.
- 了解论坛如何促进网络,知识共享和赋权.
主要方法:
- 与17名与会者进行了半结构面试 (2023年11月 - 2024年4月).
- 参与者包括痴呆症患者,无薪护理人员,第三部门代表,学者和卫生/社会保健提供者.
- 对匿名的成绩单进行了感应性主题分析,并得到了公众顾问的意见.
主要成果:
- 出现在四个主题:促进网络,提高知识/能力,通过声音赋权和利益相关者的多样性 (缺乏背景).
- 论坛的参与显著增加了网络和关系建设,特别是跨越专业界限.
- 虽然论坛是包容性的,但在参加者的背景上缺乏多样性,例如种族.
结论:
- 实践社区有效地促进各种利益相关者之间的网络和知识交流.
- 未来的外展对于增强参与者背景的多样性和确保新参与者的持续涌入至关重要.
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