无论如何,这是谁的声音? 智障成年人和未来规划:对定性研究的范围审查
I Belperio1, R Walker1, C Bigby2
1College of Nursing and Health Sciences, Flinders University, Adelaide, Australia.
Journal of intellectual & developmental disability
|January 16, 2025
概括
对智障成年人未来规划的研究表明,家庭观点占主导地位. 成年人与ID和服务提供商的声音需要在规划过程中得到更多的纳入.
科学领域:
- 关于残疾人的研究.
- 老年学是一门学科.
- 医疗保健规划 医疗保健规划
背景情况:
- 未来规划支持智力障碍 (ID) 的老年人及其家人.
- 规划过程往往涉及有身份证的成年人,家庭成员和服务提供者.
- 目前的文献缺乏关于谁的观点主导着未来规划讨论的清晰度.
研究的目的:
- 确定研究中关于智障成年人未来规划的观点.
- 检查ID成年人未来规划经验的关键方面.
- 分析文献中不同利益相关者群体的代表性.
主要方法:
- 进行了对定性研究的范围审查.
- 该审查涵盖了2012年至2022年间出版的文献.
- 重点是关于ID成年人和未来规划的研究.
主要成果:
- 父母和兄弟姐妹的观点在研究中占主导地位.
- 患有智障的成年人的观点代表性不足.
- 服务提供商的观点也不足.
结论:
- 提高成年人ID的观点对于有效的未来规划至关重要.
- 在规划过程中,有意义地参与成年人ID是必不可少的.
- 需要进一步研究,重点关注服务提供商的经验.
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