父母对其患有严重智力和多重残疾的孩子的默认知识:一种定性研究
Kasper Kruithof1, Maartje Hoogsteyns1, Ilse Zaal-Schuller2,3
1Department of Ethics, Law & Humanities, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
Journal of intellectual & developmental disability
|January 16, 2025
概括
父母发展深刻的,直观的知识,照顾有深度智力和多重残疾 (PIMD) 的孩子. 这种默认的知识对于满足孩子复杂需求至关重要.
科学领域:
- 关于残疾人的研究.
- 育儿研究研究 育儿研究
- 定性研究方法 定性研究方法
背景情况:
- 父母的默契知识对于患有深度智力和多重残疾 (PIMD) 的人来说至关重要.
- 这种知识的性质和应用仍然未被充分探索.
- 了解父母的默认知识对于改善护理实践至关重要.
研究的目的:
- 探索父母隐秘知识在照顾PIMD患者时的性质和使用.
- 确定父母如何发展和应用他们对孩子需求的直观理解.
- 调查默认知识在促进"良好的护理"中的作用.
主要方法:
- 与11名家长进行了半结构面试.
- 采访的重点是父母对孩子行为的默认知识,通过视频录像获取信息.
- 用专题分析来分析采访数据.
主要成果:
- 父母将默认的知识描述为对孩子微妙的线索和状态的直观"知道".
- 这种知识源于近距离和互动的历史.
- 父母强调它在确保满足孩子需求方面发挥着至关重要的作用.
结论:
- 父母的默契知识有助于为患有PIMD的个体提供"良好的护理".
- 讨论了对医疗和护理实践的影响,强调了这种知识的价值.
- 考虑了利用和解决父母默认知识局限性的策略.
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