探索实施智障成年人国家残疾人保险计划的复杂性:父母的观点
Jan Lloyd1, Karen Moni1, Monica Cuskelly2
1School of Education, The University of Queensland, Brisbane, Australia.
Journal of intellectual & developmental disability
|January 17, 2025
概括
实施国家残疾人保险计划 (NDIS) 计划为支持智力残疾成年人的家庭带来了挑战. 浏览官僚机构和寻找支持人员是关键障碍,尽管我们对实现目标的资金非常感激.
科学领域:
- 关于残疾人的研究.
- 医疗保健服务研究 医疗服务研究
- 社会政策 社会政策 社会政策
背景情况:
- 国家残疾人保险计划 (NDIS) 是一个重大政策转变,影响残疾人和他们的家人.
- 家庭成员通常在促进NDIS计划的创建和实施方面发挥着至关重要的作用.
- 了解NDIS计划实施过程中家庭遇到的促进者和障碍,对于有效的服务提供至关重要.
研究的目的:
- 调查实施NDIS计划的家庭对智力残疾成年参与者的经验.
- 从家庭的角度确定在NDIS计划实施过程中遇到的推动因素和障碍.
主要方法:
- 涉及20个家庭组的定性研究,其中包括智力障碍的成年参与者.
- 通过半结构面试收集数据.
- 对面试数据进行主题分析,以确定关键主题.
主要成果:
- 家庭报告说,由于NDIS资助,参与者的机会增加了.
- 导航NDIS官僚机构和寻找合适的服务和支持人员的挑战是显著的障碍.
- 与服务提供商建立伙伴关系以及NDIS实施对家庭动态的影响是关键主题.
结论:
- 对家庭来说,NDIS计划的实施是一个复杂的过程.
- 虽然资金是有价值的,但官僚主义和劳动力短缺等系统性问题阻碍了进步.
- 未来的研究应该探索家庭在规划和实施中的角色,NDIS评估必须纳入家庭经验.
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