支持智障成年人探索决策偏好,约束和后果的家长策略
Christine Bigby1, Jacinta Douglas1,2, Elizabeth Smith1
1Living with Disability Research Centre, La Trobe University, Melbourne, Australia.
Journal of intellectual & developmental disability
|January 17, 2025
概括
智力障碍成年人的父母在决策支持方面面临挑战. 他们制定了控制,影响和启用风险等策略,以应对这些复杂性,并尊重他们成年孩子的意愿.
科学领域:
- 关于残疾人的研究.
- 家庭支持 家庭支持
- 决策 - 决策 - 决策 - 决策
背景情况:
- 支持智障成年人的决策提出了多方面的挑战.
- 了解父母在提供决策支持方面的经验至关重要.
研究的目的:
- 探讨家长在为智障成年人提供决策支持时遇到的困难.
- 确定家长用来克服这些困难的策略.
主要方法:
- 采用社会构造主义的理论观点.
- 对23位父母进行了半结构化采访,这些父母为智力障碍的成年人提供支持.
- 使用模板方法进行数据分析.
主要成果:
- 确定了三个核心类别的发现:做出正确的决定,复杂化决策支持的因素,以及管理不确定性的策略.
- 关键策略包括控制,影响,扩大视野,并使风险.
- 决策支持受到创造困难的因素和父母应对机制的影响.
结论:
- 获得了父母面临的挑战和决策支持中的适应性策略的见解.
- 调查结果可以提高家长的能力,以支持与个人意愿和偏好一致的决策.
- 强调尊重智力残疾成年人的自主权的重要性.
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