癌症患者如何使用互联网搜索健康信息:基于场景的大声思考研究
Fiorella Huijgens1,2,3, Pascale Kwakman1,2,3, Marij Hillen1,2,3
1Department of Medical Psychology, Amsterdam University Medical Centers, location Academic Medical Center, University of Amsterdam, Amsterdam, Netherlands.
JMIR infodemiology
|January 17, 2025
概括
癌症患者因各种原因在网上寻求健康信息,随着疾病的进展,他们的动机从认知转向情感需求. 了解这些不断变化的需求是改善在线健康平台和患者护理的关键.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 行为科学 行为科学
背景情况:
- 癌症患者越来越多地使用互联网获取健康信息.
- 现有的研究往往过于简化了基于网络的健康信息搜索 (WHIS),仅仅是接近或避免.
- 需要了解癌症患者在整个疾病轨迹中的WHIS的动态性质和不断变化的动机.
研究的目的:
- 探索癌症患者在网络基础上的健康信息搜索 (WHIS) 背后的动机和情绪.
- 在不同疾病阶段,研究由WHIS引起的认知和情绪反应.
- 用基于场景的,大声思考的方法分析WHIS的动态模式.
主要方法:
- 招募了15名模拟患者 (癌症患者,幸存者,护理人员).
- 使用了3种疾病轨迹场景:诊断前,治疗和幸存者阶段.
- 在网页搜索时使用一个大声思考协议,独立编码和主题分析.
主要成果:
- 关键的WHIS动机包括减少不确定性,寻求放心,并获得授权.
- 患者的需求从早期的认知发展到后期的情感需求.
- WHIS的方法各不相同 (从探索到集中),适应信息的复杂性和情感影响,经常引发波动的情绪.
结论:
- 了解癌症患者的WHIS动机和情绪在不同疾病阶段是有价值的.
- 了解搜索模式对于优化基于网络的健康平台至关重要.
- 调查结果可以指导临床医生支持患者的信息需求,并将其引导到可靠的来源.
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