探索中国儿童和青少年患的耻辱感:一项定性研究
Jing Zhao1, Shuangzi Li2, Ni Zhang3
1Department of Nursing Children's Hospital of Chongqing Medical University National Clinical Research Center for Child Health and Disorders Ministry of Education Key Laboratory of Child Development and Disorders Chongqing Key Laboratory of Pediatrics Chongqing China.
Epilepsy & behavior : E&B
|January 17, 2025
概括
在中国,患有的儿童和青少年因刻板印象和发作不可预测性而遭受严重的耻辱. 教育和同行支持对于改善心理社会结果和福祉至关重要.
科学领域:
- 儿科神经学 儿科神经学
- 心理社会健康 心理健康
- 卫生社会学 卫生社会学
背景情况:
- 与相关的耻辱严重影响儿童和青少年的生活质量.
- 了解 stigma 的生活经验对于制定有效的支持策略至关重要.
研究的目的:
- 探索中国儿童和青少年之间与相关的耻辱的多方面的经验.
- 识别与耻辱相关的触发因素,担忧,影响和应对策略.
主要方法:
- 针对16名被诊断患有的儿童和青少年 (10-18岁) 进行了有目的的抽样.
- 进行了半结构面试,录音,转录和翻译.
- 采用主题分析来确定参与者的经验中的关键主题和子主题.
主要成果:
- 出现了四个主要主题:耻辱触发因素 (刻板印象,发作表现),关注点 (药物,学术界,未来),对日常生活的影响 (睡眠,活动) 和应对策略 (教育,同行支持).
- 的刻板印象和不可预测的发作被确定为主要的耻辱触发因素.
- 担忧扩展到抗药物 (ASM),学术压力和未来的不确定性.
结论:
- 这些发现揭示了污名对中国年轻人的复杂性质和重大负面影响.
- 虽然污名化带来了挑战,但也注意到了积极的经验和性.
- 综合教育和同行支持对于提高心理社会结果和告知减少耻辱的干预至关重要.
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