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Gareth Baynam1, Joanne Siffleet2, Theresa Abbott2

  • 1Rare Care Centre, Perth Children's Hospital, Western Australia, Australia; Undiagnosed Diseases Program -WA, Genetic Services of WA, King Edward Memorial Hospital, Western Australia, Australia; Western Australian Register of Developmental Anomalies, King Edward Memorial Hospital, Western Australia, Australia.

概括

一个新的护理模式通过跨部门协调改善罕见和未诊断疾病的儿童的健康状况. 这种方法提高了福祉,并指导专业人士为受影响的家庭创造更好的服务.

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