多语言患者报告的听力障碍症结局指标的综合审查
Grace Chow1, Maxwell Scher2, Gintas P Krisciunas2
1Department of Otolaryngology-Head and Neck Surgery, Boston Medical Center, Boston, MA.
Journal of voice : official journal of the Voice Foundation
|January 17, 2025
概括
语音障碍的多语言患者报告结果测量 (PROMs) 已可用,但语言表现各不相同. 语音障碍指数 (VHI) 是翻译最多的,尽管很少有研究符合文化验证标准.
科学领域:
- 耳鼻喉科 耳鼻喉科 耳鼻喉科
- 语音语言病理学 语音语言病理学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 患者报告的结果测量 (PROM) 对于临床护理和研究中的语音评估至关重要.
- 多语种PROM对于包括不同患者群体在语音研究中至关重要.
- 本综述重点关注成人听障症的翻译和验证的PROM.
研究的目的:
- 为了比较成年人听力障碍的可用翻译和验证的PROM.
- 评估这些PROM的语言代表性和文化验证.
- 为了识别广泛翻译的PROM和使用的常用语言.
主要方法:
- 对多个数据库 (科克兰图书馆,PubMed,OnBase) 和参考列表进行了全面的文献审查.
- 对比PROM开发,可用的语言,以及翻译成非英语语言的PROM的人口统计数据.
- 评估文化验证与Beaton等对比. 六个阶段的跨文化适应指南.
主要成果:
- 在21个失声PROM中,有13个 (62%) 是用英语以外的语言提供;9个 (43%) 是用七种或更多语言提供.
- 语音障碍指数 (VHI) 和VHI-10是翻译最多的,其次是语音疲劳指数 (VFI),歌唱-VHI (S-VHI) 和语音相关的生活质量 (V-RQOL).
- 波斯语,卡纳达语和土耳其语是最常见的非英语语言;只有14%的研究充分遵循文化适应指南.
结论:
- 对于音障的多语言PROM是可访问的,但语言表示不均.
- VHI,VFI,S-VHI和V-RQOL是最常被翻译的仪器.
- 需要改进翻译和验证工作,以确保全球人口对音障的多样化和准确评估.
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