在维多利亚州为患有前列腺癌的男性开发,试点和评估患者支持门户:一项行动研究研究
Benjamin Shemesh1, Jacinta L Opie1, Rodney L Dunn2
1School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
概括
该 BroSupPORT 网络门户帮助前列腺癌 (PCa) 的男性获得量身定制的信息,并比较结果. 这种共同设计的工具可以解决大规模的PCa支持性护理需求.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者支持 患者支持
背景情况:
- 患有前列腺癌 (PCa) 的男性及其支持网络面临着难以获得高质量,公正的信息,以获得护理和决策.
- 共同设计的网页门户"BroSupPORT"是为了应对这些挑战而开发的.
研究的目的:
- 描述"BroSupPORT"网络门户网站的开发,试点和评估.
- 评估共同设计的前列腺癌护理患者门户网站的可行性和用户体验.
主要方法:
- BroSupPORT被整合到维多利亚州前列腺癌结果登记 (PCOR-Vic) 电子患者报告结果过程中.
- 一个比较器工具允许对结果进行比较;后勤回归分析了同意因素.
- 门户网站使用数据和用户反调查为评估提供了信息.
主要成果:
- 在为期4个月的试点期间,57%的男性同意使用BroSupPORT.
- 用户发现门户网站易于使用,令人放心和信息丰富,性功能是最受关注的方面.
- 9%的用户发现患者报告的结果比较难以解释.
结论:
- 一个能够进行结果比较和资源访问的患者门户网站可能是前列腺癌 (PCa) 支持性护理的可扩展解决方案.
- BroSupPORT证明了在人口基础上解决复杂的支持性护理需求的潜力.
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