儿科血栓瘤的健康素养:一个景观分析
Denise Bastas1,2, Athena Mancini1,2, Gina Wong1,2
1Child Health Evaluative Sciences Research Program, Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada.
Research and practice in thrombosis and haemostasis
|January 20, 2025
概括
大多数患有静脉血栓事件 (VTE) 的儿科患者及其护理人员的健康素养较低. 许多人对自己的血栓形成知识不满,强调需要更好的教育策略.
科学领域:
- 儿科血液学 儿科血液学
- 健康 结果 研究 研究 结果
- 患者教育 患者教育
背景情况:
- 健康素养对患有静脉血栓事件 (VTE) 的儿科患者的自我管理和健康结果产生重大影响.
- 了解健康素养水平对于改善这一群体的护理至关重要.
研究的目的:
- 评估青少年和患有VTE儿童的父母/照顾者的一般健康素养.
- 评估他们对血栓相关知识的看法,满意度和信念.
主要方法:
- 这是一项涉及101名青少年 (10-18岁) 和儿科患者 (0-18岁) 的父母/照顾者,有VTE病史的横截式研究.
- 利用验证的健康素养尺度 (REALM,HLAS,e-HLS) 和研究人员生成的知识评估问题.
- 评估自我报告的感知,满意度,比较知识和血栓形成信息的重要性.
主要成果:
- 74%的青少年和59%的家长/照顾者表现出低的一般健康素养.
- 只有44%的人对自己的血栓形成知识感到满意,尽管96%的人同意它的重要性.
- 青少年报告了更高的满意度,但倾向于高估他们的知识与父母/照顾者相比.
结论:
- 显著比例的儿科VTE患者和他们的护理人员表现出低的健康素养和对血栓形成知识的不满.
- 青少年可能会高估他们对血栓形成的理解.
- 迫切需要有针对性的策略来提高健康素养,并改善这一群体的血栓形成教育.
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