护理人员拥有患有唐氏综合征的孩子的经验:一个元合成
Xiao Nan Zhang1,2, Shuo Zhang1,2, Chun Yan Liu1,2
1Department of Nursing, Children's Hospital of Soochow University, No. 92 Zhong Nan Street, Soochow, Jiangsu Province, China.
BMC nursing
|January 20, 2025
概括
唐氏综合征儿童的照顾者面临着重要的养,教育和社会挑战,导致大量的压力. 加强支持系统和公众意识对于改善他们的福祉和家庭生活至关重要.
科学领域:
- 儿科护理 儿科护理
- 家庭支持服务 家庭支持服务
- 关于残疾人的研究.
背景情况:
- 患有唐氏综合征的儿童的照顾者面临着多方面的挑战.
- 了解护理人员的经验对于制定有效的支持策略至关重要.
研究的目的:
- 将唐氏综合征儿童的照顾者的经验,感受和需求综合起来.
- 确定影响护理人员幸福感的关键主题.
主要方法:
- 按照PRISMA指南进行系统审查和元综合 (Page等人,2021).
- 在十个主要的学术数据库中进行全面搜索.
- 分析了8项定性研究,重点关注护理人员的经验.
主要成果:
- 关键主题包括养压力,教育希望,社会耻辱和心理/家庭负担.
- 照顾者由于养困难,教育问题和歧视而经历了相当大的压力.
- 确定了对强大的应对机制,机构支持和公共教育的需求.
结论:
- 总结了照顾唐氏综合征儿童的护理人员的日常照顾经历.
- 提供了旨在减少护理人员负担的干预措施的证据.
- 强调通过有针对性的支持改善家庭生活质量的重要性.
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