利用社区参与来塑造生物医学研究的优先事项
Sara Suliman1, Lillian Agyei2, Shaista A Afzal3
1Division of Experimental Medicine, University of California San Francisco, San Francisco, CA, USA; Chan Zuckerberg Biohub, San Francisco, CA, USA.
Trends in immunology
|January 22, 2025
概括
社区参与对于公平的生物医学研究至关重要. 一个试点项目突出了不信任,代表性差距和对文化敏感研究的需求,强调了社区和学术伙伴关系.
科学领域:
- 生物医学研究的研究.
- 参与社区研究的研究.
- 卫生公平性健康公平性
背景情况:
- 社区参与对于公平的生物医学研究至关重要,但往往未得到充分利用,特别是在边缘化群体中.
- 将公众反纳入研究设计是解决社区特定健康需求和优先事项的关键.
研究的目的:
- 描述一个协作试点项目,将社区反纳入生物医学研究优先事项.
- 通过结构化的参与过程,从边缘化社区中确定关键主题和研究重点.
主要方法:
- 一个由陈扎克伯格倡议资助的试点项目与加州大学旧金山分校 (UCSF) 与拉菲基健康与健康联盟合作.
- 以受影响社区的研究优先级为模式的重点小组被用来收集社区的意见.
主要成果:
- 参与者确定了一些重要主题,包括对医疗保健系统的不信任和代表性差距.
- 突出了对文化敏感的研究和优先事项的需求,如心理健康,慢性疾病和获得黑人医疗保健提供者的需求.
结论:
- 学术机构和社区组织之间持续的基层合作伙伴关系是推动包容性研究议程的必要条件.
- 社区的参与对于确保生物医学研究重点是公平的,并反映边缘化群体的需求至关重要.
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