全球德尔菲共识关于一般性性牛皮的治疗目标
Jonathan N Barker1, Emmylou Casanova2, Siew Eng Choon3
1St John's Institute of Dermatology, Faculty of Life Sciences and Medicine, King's College London, London, UK.
The British journal of dermatology
|January 23, 2025
概括
这项研究建立了对泛性性牛皮 (GPP) 治疗目标的共识,并纳入了患者的观点,以更以患者为中心的方法来管理这种慢性炎症疾病.
科学领域:
- 皮肤病学 皮肤病学
- 炎症性疾病 炎症性疾病
- 患者报告的结果
背景情况:
- 泛性性牛皮 (GPP) 是一种慢性,全身性,中性恋性炎症性疾病.
- 之前关于GPP的共识努力缺乏患者的观点和明确的治疗目标.
研究的目的:
- 通过包括患者参与Delphi小组,就精细化,具体的GPP治疗目标达成共识.
- 建立GPP管理的总体原则和短期和长期治疗目标.
主要方法:
- 召开了一个由30名皮肤科医生和3名患者代表组成的全球Delphi小组.
- 关于GPP治疗目标的声明是从系统的文献审查中开发出来的,并由一个指导委员会改进.
- 共识被定义为≥80%的批准,投票分轮进行.
主要成果:
- 在第一轮的26个陈述中,在23个陈述上达成共识 (≥90%的同意).
- 关键发现强调了由患者和医生共同开发的及时,定制,多学科的GPP治疗.
- 短期目标包括清除,减少症状和预防并发症; 长期目标侧重于持续控制和改善生活质量.
结论:
- 首个包括患者观点在内的全球GPPDelphi小组就治疗原则和目标达成共识.
- 研究结果强调了以患者为中心的护理的重要性,并为制定包容性GPP治疗指南提供了见解.
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