产妇护理提供者在怀孕期间提供关于新生儿血点查信息的经验:一项荷兰调查研究
Jasmijn E Klapwijk1, Janneke Gitsels-van der Wal2,3, Linda Martin2,3
1Department of Human Genetics and Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The Netherlands.
International journal of neonatal screening
|January 23, 2025
概括
荷兰的产妇保健提供者经常提供新生儿血点查 (NBS) 信息,但时间和完整性可能与国家指南不一致. 这影响了可治疗的婴儿疾病的早期干预.
科学领域:
- 公共卫生 公共卫生
- 新生儿护理 新生儿护理
- 遗传学 是一个遗传学.
背景情况:
- 新生儿血点查 (NBS) 对于早期发现可治疗的婴儿疾病至关重要.
- 荷兰的指导方针要求产妇护理提供者 (MCP) 提供NBS的全面产前信息.
研究的目的:
- 调查荷兰MCP关于在怀孕期间提供NBS信息的做法.
- 评估遵守国家指导方针的时间,内容和NBS信息传递方法.
主要方法:
- 一个在线问卷被分发给了荷兰的279个MCP.
- 收集有关MCP角色,信息传递方法,NBS讨论时间和内容的数据.
主要成果:
- 84.9%的MCP提供了NBS信息,86.0%认为这是他们的责任.
- 信息传递不同;68.8%发生在妊娠34-37周之间,通常包括目的,程序和自愿参与.
- 诸如第一次怀孕和家长的素养等因素影响了信息传递方法,其中25.7%只提供了传单.
结论:
- 虽然MCP在很大程度上承担了NBS信息的责任,但目前的做法与国家指导方针在时间,方法和完整性方面有所不同.
- 确保一致且符合指导方针的NBS信息传递对于有效的早期干预计划至关重要.
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