针对用免疫检查点抑制剂治疗癌症患者的症状管理辅导系统的可用性和有用性:比较混合方法研究
Savannah Lucia Caterina Glaser1,2, Itske Fraterman3, Noah van Brummelen1,4
1Department of Medical Informatics, Amsterdam UMC - University of Amsterdam, Amsterdam, Netherlands.
JMIR formative research
|January 23, 2025
概括
癌症患者更好的生活体验 (CAPABLE) 电子健康工具对免疫治疗患者来说是有前途的. 包括有直接经验的患者对于识别症状报告中的关键可用性问题至关重要.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 人与计算机的交互
背景情况:
- 免疫疗法改善了癌症预后,但患者面临症状管理的挑战.
- 像CAPABLE这样的电子健康工具旨在帮助接受免疫治疗的癌症患者的症状管理.
- 可用性是电子卫生工具有效性和用户福祉的关键.
研究的目的:
- 评估CAPABLE电子健康工具原型的可用性,用户体验和可接受性.
- 为了比较免疫治疗患者和更广泛的参与者群体之间的可用性发现.
主要方法:
- 使用性研究涉及大声思考任务和问卷.
- 参与者包括接受免疫治疗的黑色素瘤/细胞癌患者和没有接受免疫治疗的患者.
- 可用性问题被编码并映射到一个框架中.
主要成果:
- 发现了76个可用性问题;22个与任务技术相适应有关.
- 关键的症状监测问题主要是由免疫治疗患者发现的.
- 高感知有用性 (8/10声明同意) 和系统可用性尺度得分 (80/100).
结论:
- 尽管存在可用性问题,但CAPABLE原型证明了积极的感知实用性.
- 包括目标最终用户 (免疫疗法患者) 对于识别关键症状报告问题至关重要.
- 更广泛的参与群体可能足以识别不那么关键的可用性问题.
相关概念视频
01:27Tumor Immunotherapy
467
Immunotherapy is a treatment that boosts or manipulates the immune system to fight diseases, including cancer. For instance, by stimulating an immune response through vaccinations against viruses that cause cancers, like hepatitis B virus and human papillomavirus, these diseases can be prevented. Nonetheless, some cancer cells can avoid the immune system due to their rapid mutation and division. The immune response to many cancers involves three phases: elimination, equilibrium, and escape.
467
01:21Cancer Survival Analysis
327
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...
327