探索有过精神疾病经验的人参与共同开发结果措施的参与:系统性审查
Niamh Molloy1, Imogen Kilcoyne1, Hannah Belcher2
1Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.
The lancet. Psychiatry
|January 23, 2025
概括
与有实践经验的人共同开发患者报告的结果指标 (PROM) 提高了研究的相关性. 这项研究确定了23个PROM,突出了诸如增加可接受性和改进共同开发方法的需要等好处.
科学领域:
- 心理健康研究 心理健康研究
- 患者报告的结果
- 医疗保健服务研究 医疗服务研究
背景情况:
- 研究结果往往未能捕捉到有过心理健康经验的个人的优先事项.
- 这种脱节可能会影响试验的有效性,可能会缺失好处或误解结果.
- 共同开发结果措施对于纳入患者观点至关重要.
研究的目的:
- 确定心理健康结果措施严格定义为共同开发的.
- 描述参与措施共同开发的每个阶段的方法和程度.
- 为加强共同开发过程提供建议.
主要方法:
- 在五个电子数据库 (MEDLINE,科学网,Scopus,PsycINFO,Embase) 进行系统的文献搜索.
- 包括非同行评审的文献和手工搜索.
- 根据PRISMA指南和质量评估,提取的数据的叙述综合.
主要成果:
- 从34篇论文中确定了23个心理健康结果指标.
- 服务用户研究人员和实践经验小组经常充当顾问,领导定性练习.
- 报告的好处包括增加措施的相关性和可接受性,尽管注意到参与方面的差距.
结论:
- 患者报告的结果措施的共同开发是可行的,并提高了相关性和可接受性.
- 确定了方法的建议和评估参与量的一种新规模.
- 挑战仍然存在,但共同开发为研究和实践提供了更有意义的结果.
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