针对儿童脑瘤幸存者的目标过渡准备工作坊:可行性,可接受性和初步影响
Julie Carrier1, Tziona Lugasi2, Nathalie Labonté2
1Department of Psychology, Université de Montréal, Montréal, QC H3T 1J4, Canada.
Current oncology (Toronto, Ont.)
|January 24, 2025
概括
这项试点研究探讨了儿童脑瘤幸存者 (PBTS) 的过渡准备干预. 该计划在提高自我管理技能和为成人医疗保健机构做好准备方面表现有希望.
科学领域:
- 在瘤学瘤学.
- 儿科医疗保健 儿科医疗保健
- 过渡医学是过渡医学.
背景情况:
- 儿童脑瘤幸存者 (PBTS) 面临着需要持续医疗护理的长期健康挑战.
- 从儿科到成人保健的过渡对于管理癌症治疗的晚期影响至关重要.
- 需要有效的过渡准备干预来支持PBTS.
研究的目的:
- 评估针对PBTS的有针对性的过渡准备干预的可行性和可接受性.
- 评估干预对自我管理技能和过渡准备的初步影响.
- 收集关于优化未来干预开发的见解.
主要方法:
- 一项试点研究涉及三个混合研讨会的PBTS和他们的护理人员.
- 研讨会的重点是与疾病相关的自我管理,社会技能和认知功能.
- 通过招聘和保留评估可行性;通过满意度调查评估可接受性;通过过渡准备评估 (TRAQ) 问卷调查初步影响.
主要成果:
- 12个 (38%) 符合条件的DYAD参加了;10个参加了至少两个研讨会.
- 报告的参与者满意度很高 (家长86%,PBTS73%).
- 在临床上有意义,但在统计学上不显著,在干预后观察到PBTS和护理人员的过渡准备度增加.
结论:
- 过渡准备干预表明了PBTS和护理人员的可行性和可接受性.
- 初步结果表明,这对过渡准备技能产生了积极影响.
- 建议进一步开发和调整以提高影响力和疗效,以改善长期结果.
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