陪伴孩子去世的母亲:重新开始,但永远不会忘记
Maria Eduarda Correia1,2,3, Maria Teresa Magão2,4, Maria Antónia Rebelo Botelho4
1Department of Nursing, Higher School of Health, Polytechnic Institute of Portalegre, 7300-555 Portalegre, Portugal.
Nursing reports (Pavia, Italy)
|January 24, 2025
概括
照顾患有复杂慢性疾病的孩子的父母面临着深刻的痛苦和独特的需求. 这项研究探讨了他们的生活经历,为改善儿科息护理和丧亲支持提供了见解.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 定性研究是指质量研究.
- 现象学的现象学
背景情况:
- 陪伴患有复杂慢性疾病的孩子去世的父母面临着独特的脆弱性和痛苦.
- 这种经历深深影响了父母的幸福感,需要专门的支持.
- 儿科息护理机构对于解决这些需求至关重要.
研究的目的:
- 描述那些陪伴着孩子患有复杂慢性疾病的父母生活的经验,直到他们去世.
- 了解家长在儿科息护理背景下的旅程.
- 确定父母对孩子丧生经历的关键主题.
主要方法:
- 定性描述性的现象学研究.
- 与9名母亲进行的现象学访谈.
- 数据使用van Kaam的方法进行分析,被Moustakas修改.
主要成果:
- 该现象的基本结构是通过三个主题描述的:"面对疾病的前兆"",与生病的孩子 (一起) 生活"和"重新开始,永远不要忘记:与一个缺席的孩子生活".
- 父母在陪伴孩子的经历中发现了自我转变的意义.
- 这项研究强调了长期照顾和失去的深刻情感和心理影响.
结论:
- 父母将自我转变的意义归因于陪伴孩子经历复杂的疾病和死亡的经历.
- 这些发现可以提高儿科息护理和丧亲支持的护理干预措施.
- 这项研究有助于儿童和儿科息护理的研究和教育.
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