一本关于公众参与儿童和青少年参与牙科研究的实用指南
Emma Morgan1, Jennifer Preston2, Sondos Albadri3
1NIHR Academic Clinical Fellow in Paediatric Dentistry, University of Liverpool, Liverpool, UK. emorgan@liverpool.ac.uk.
British dental journal
|January 24, 2025
概括
公共参与 (PI) 在健康研究中将人们作为合作伙伴,而不是受试者. 本文探讨了儿童和青少年 (CYP) 在研究中的有意义参与,尊重他们的权利和应对挑战.
科学领域:
- 健康研究方法的方法论.
- 儿童权利和参与
背景情况:
- 公共参与 (PI) 在健康研究中涉及"与"或"由"个人合作,超越"对"或"为他们"的研究.
- 联合国"儿童权利公约"确认儿童和青少年 (CYP) 有权就影响他们的事项表达意见 (第12条).
- 资助者越来越多地要求在研究项目中提供IP证据.
研究的目的:
- 概述儿童和青少年 (CYP) 在健康研究中的有意义的公众参与 (PI) 的原则.
- 从咨询到用户主导的研究,对CYP参与的不同水平进行分类.
- 突出实施CYP参与研究的机遇和挑战.
主要方法:
- 这篇论文回顾了现有的公共参与研究的框架和原则.
- 它对儿童和青少年 (CYP) 的参与水平进行了分类.
- 它讨论了参与CYP在各个研究阶段的实际方面.
主要成果:
- 公众参与 (PI) 可以分为不同的层次:咨询,协作和用户主导的方法.
- 儿童和青少年 (CYP) 可以为所有研究阶段做出贡献,包括问题识别,设计和传播.
- 资金和时间限制等挑战可能会阻碍有效的PI.
结论:
- 儿童和青少年 (CYP) 在健康研究中的有意义参与是可以在各种环境中实现的.
- 坚持基本原则可以促进有效的PI,尊重CYP权利.
- 进一步探索克服CYP参与挑战的策略是有必要的.
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