在接受癌症治疗的多病症患者中的症状表现:一种定性描述性研究
Sugandha Aggarwal1, Nayung Youn1, Alaa Albashayreh1
1College of Nursing, University of Iowa, 50 Newton Rd, Iowa City, IA, 52242, USA.
概括
患有癌症和多种慢性疾病的人经常通过癌症的镜头来看待症状,而不是他们的整体健康状况. 了解这些症状表征是更好的自我管理和护理的关键.
科学领域:
- 在瘤学瘤学.
- 慢性疾病管理 慢性疾病管理
- 质量健康研究 质量健康研究
背景情况:
- 症状表现影响癌症患者的自我管理.
- 多病症复杂化了疾病的感知.
- 对于多发性癌症的症状表征的理解有限.
研究的目的:
- 探索癌症和至少一种其他慢性疾病的成年人的症状表征.
- 了解癌症和多病症患者如何感知和管理他们的症状.
主要方法:
- 17名成人参与者被诊断患有癌症和多病症的定性描述性研究.
- 半结构面试以莱文塔尔的疾病表现的常识模型为指导.
- 主题分析以确定症状感知中的关键主题和子主题.
主要成果:
- 五个主题出现了:感知症状,功能限制,自我管理行为,多米诺子理论和症状作为副作用.
- 确定了与疾病表征的常识模型相一致的主题.
- 大多数参与者专注于与癌症相关的症状,很少有人将多病症纳入他们的表征.
结论:
- 癌症患者多病症的症状表现主要以癌症为中心.
- 参与者认识到症状相互作用,但很少将它们与更广泛的健康状况联系起来.
- 需要进一步研究这些表现如何影响患者-提供者沟通和应对策略.
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