在儿科息护理背景下撰写传记:审查和可行性数据
Sarah Potter1,2, Sandra Coombs1,2, Tiina Jaaniste1,3
1Department of Palliative Care, Sydney Children's Hospital, Randwick, NSW 2031, Australia.
Children (Basel, Switzerland)
|January 25, 2025
概括
传记写作为儿科息护理患者及其家人提供有意义的体验. 故事项目证明了它的可行性,为所有参与者提供了宝贵的好处.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 儿童健康 儿童健康
- 心理社会支持 心理社会支持
背景情况:
- 传记写作被用于成人息护理中的生活回顾和创造意义.
- 在儿科息护理中,传记程序的应用仍然不那么被探索.
研究的目的:
- 探索在儿科息护理中写传记计划的可行性.
- 将"故事项目"作为儿童传记写作的典范.
主要方法:
- 一个叙事文学评论,比较成人和儿科的传记程序.
- 试点调查数据来自六名志愿者传记作者.
- 对挑战和好处的定性数据进行主题分析.
主要成果:
- 确定的挑战包括延误,家庭困境和后勤问题.
- 感知到的好处包括积极的家庭过程,志愿者丰富,以及传记的内在价值.
- 传记完成时间从3-20个月不等,大多数不到12个月.
结论:
- 传记写作,以故事项目为例,显示了作为儿童息护理的有价值干预的承诺.
- 早期可行性数据表明,对患者,家属和志愿者来说有显著的好处.
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