生活经验与新诊断的晚期癌症的生活经验 - 一个定性访谈研究研究
Johanna Swenne1,2, Ricko Damberg Nissen3, Torben Frøstrup Hansen1,2
1Department of Oncology, Vejle Hospital, University Hospital of Southern Denmark, Vejle, Denmark.
概括
被诊断出患有无法治愈的癌症的患者面临着重大挑战. 了解他们的生活经验对于有效地整合息治疗 (PC) 至关重要,解决实际需求和存在的担忧,以获得更好的患者结果.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 心理社会瘤学
背景情况:
- 无法治愈的癌症严重影响患者的生活,需要全面的息治疗 (PC).
- 建议早期整合PC,但往往实施不佳.
- 解决患者的经验对于成功的早期PC整合至关重要.
研究的目的:
- 调查新诊断患有无法治愈的癌症的患者的生活经历.
- 为早期息护理的整合提供信息.
- 在不可治愈的癌症诊断的初始阶段了解患者的需求和愿望.
主要方法:
- 现象学解读框架与解释性描述方法.
- 针对13名被诊断患有无法治愈的癌症的参与者进行了有目的的抽样.
- 半结构化,深度采访和代的主题分析.
主要成果:
- "站在风暴中"的核心主题出现了.
- 其中的子主题包括:行动的冲动,清晰度/觉醒,改变自我认知.
- 随着疾病理解的深化,患者表现出了转向和解的转变.
结论:
- 患有无法治愈的癌症的患者经历涉及复杂的心理,情感和生存反应.
- 医疗保健专业人员必须在临床实践中解决存在的担忧.
- 承认和支持存在斗争有助于敏感的讨论,并改善患者接受护理.
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