多发性硬化护理改善护理和教育 (MSNICE):一项观察性研究
Liesbeth Van Hijfte1,2, Melissa Cambron3,4, Roel Crols5
1Department of Neurology, Ghent University Hospital, Ghent, Belgium. liesbeth.vanhijfte@ugent.be.
BMC nursing
|January 28, 2025
概括
患有多发性硬化症 (pwMS) 的患者访问多发性硬化症护士 (MS-护士) 在与健康有关的生活质量或医疗保健成本方面没有显著差异. 然而,与多发性硬化症护士一起的pwMS显示出更高的疾病特异性知识.
科学领域:
- 神经学 神经学
- 医疗保健管理的管理
- 患者的治疗结果.
背景情况:
- 多发性硬化症 (MS) 是一种慢性神经系统疾病,影响生活质量.
- 专业护士,如多发性硬化症护士 (MS-护士) 在管理多发性硬化症患者的治疗结果中的作用越来越被认可.
- 了解MS护士接入对患者报告结果和医疗保健资源利用的影响对于优化医疗保健提供至关重要.
研究的目的:
- 调查患有多发性硬化症 (pwMS) 的人与没有接触多发性硬化症护士之间的患者报告结果,医疗保健资源利用和支出差异.
- 评估MS护士可用性对与健康相关的生活质量 (HRQoL) 和疾病知识的影响.
主要方法:
- 采用了观察性,多中心,横截面的研究设计.
- 从19个中心的334个pwMS收集了数据 (7个有MS护士,12个没有).
- 主要结局:多发性硬化症影响量-29 (MSIS-29). 二次结果:医院焦虑和抑郁量表,应对措施,健康经济参数和疾病知识.
主要成果:
- 在MSIS-29分数,抑郁症,焦虑症或pwMS与MS护士接入和不接入之间的健康支出方面,没有发现统计学上显著的差异.
- 在有多发性硬化护士的中心接受护理的PwMS与没有 (p < .001) 的PwMS相比,表现出明显更高的多发性硬化疾病知识.
结论:
- 获得MS护士的机会与pwMS的HRQoL或医疗保健支出的显著差异没有相关性.
- 多发性硬化症护士在增强特定于多发性硬化症的知识方面发挥着至关重要的作用,有可能提高自我有效性和治疗坚持.
- 进一步的研究可能会探索MS护士支持对患者教育和遵守的细微好处.
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