一个多人反思使用公众和患者的参与和参与来发展痴呆症研究
Annabel Ditton1, Deb Bunt2, Peter Berry2
1University of Exeter, Exeter, UK. ad919@exeter.ac.uk.
Research involvement and engagement
|January 28, 2025
概括
本研究概述了博士研究人员通过患者和公众参与和参与 (PPIE) 来参与痴呆症患者参与研究的实用方法. 它为克服挑战和促进有意义的合作提供了指导.
科学领域:
- 痴呆症研究研究 痴呆症研究
- 患者和公众参与和参与 (PPIE)
- 博士研究方法 博士研究方法
背景情况:
- 患者和公众参与和参与 (PPIE) 对于伦理性痴呆症研究至关重要.
- 英国现有的PPIE小组为痴呆症患者提供了机会,但博士研究人员的访问可能具有挑战性.
- 许多痴呆症患者不知道参与研究的机会.
研究的目的:
- 要总结PPIE在开发博士研究中使用的过程.
- 详细介绍与患有痴呆症的个人及其朋友的独特合作.
- 为了分享PPIE合作的经验,好处和挑战.
主要方法:
- 实际的PPIE框架与欣赏性的研究方法相结合.
- 这个过程涉及与研究实践新手的个人进行合作.
- 对道德困境及其对参与的影响的反思是核心的.
主要成果:
- 合作为研究人员和参与者提供了互惠的利益.
- 在PPIE过程中遇到的挑战被确定.
- 这项研究强调了让患有痴呆症的人直接参与研究开发的价值.
结论:
- 提供了为创建有意义的PPIE流程提供实用技巧.
- 这篇论文鼓励博士研究人员与痴呆症患者合作.
- 成功的PPIE可以提高痴呆症研究的伦理质量和相关性.
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