探索痴呆症诊断后支持的经验和改善实践的想法:联合制作的一项研究
Jemima Dooley1, Joe Webb2, Roy James3
1Centre for Academic Primary Care, Bristol Medical School, University of Bristol, UK.
痴呆症患者在诊断后经常感到被遗弃,这凸显了改善诊断后支持服务的需要. 与痴呆症患者共同设计的研究揭示了护理方面的差距,并强调了同行支持的价值.
科学领域:
- 神经学 神经学
- 老年学是指老年学的学科.
- 公共卫生 公共卫生
背景情况:
- 适应痴呆症诊断是一项挑战.
- 诊断后的支持至关重要,但往往稀缺和不一致.
- 这项研究探讨了英国各地痴呆症支持服务的变化.
研究的目的:
- 探索痴呆症患者在诊断后获得支持的经验.
- 识别当前支持的有价值方面和所需的改进.
- 与痴呆症患者共同设计更好的支持结构.
主要方法:
- 一项联合制作的研究,涉及患有痴呆症的人及其配偶.
- 在英国各地开展了五个重点小组.
- 定性探索当前的支持,有价值的元素和所需的变化.
主要成果:
- 参与者报告说,在诊断后,他们感到被遗弃,护理的连续性很小.
- 缺乏支持和难以获得福利是常见的担忧.
- 同行和自愿的支持被高度重视为信心,信息和关系联系.
结论:
- 诊断后痴呆症支持服务需要改进,包括痴呆症患者的观点.
- 让痴呆症患者参与,可以减轻寻求支持的个人和家庭的负担.
- 对痴呆症诊断的财务影响进行进一步研究是有必要的.
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