癌症和糖尿病患者对患者的看法和态度指南:混合方法研究
Lijiao Yan1,2, Ning Liang1, Zeyu Yu2
1Institute of Basic Research in Clinical Medicine, China Academy of Chinese Medical Sciences, Beijing, China.
患者指南 (PGs) 需要根据个人需求量身定制,因为患者希望获得个性化的健康信息. 通过医疗保健专业人员改善PG传播对于更好的患者参与和知情决策至关重要.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者参与 患者参与
- 临床实践指南 临床实践指南
背景情况:
- 患者指南 (PG) 是医疗保健决策的重要工具.
- 了解患者对PG的看法对于其有效实施至关重要.
研究的目的:
- 探索患者对PG的看法和态度.
- 确定影响患者使用和采用PG的因素.
主要方法:
- 使用半结构面试和问卷进行探索性的顺序混合方法设计.
- 与患者 (糖尿病,瘤学) 和临床医生进行定性访谈,随后对400名患者进行定量调查.
主要成果:
- 对于PG的认识有限 (26.5%),但总体上是积极的态度 (73.0%).
- 患者更喜欢根据个人因素 (年龄,并发症,体重) 考虑量身定制的建议,并重视可信度,可访问性和可用性.
- 缺乏信誉 (34.8%) 和一般性建议是关键障碍;医疗保健专业人员是PG传播的可信来源.
结论:
- 医疗保健医生必须是个性化的,承认患者的多样性和对知情决策的特定需求.
- 传播策略应该利用医疗保健专业人员来加强PG采用和患者参与.
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