儿童睡眠质量和神经肌肉疾病中的家长压力:描述性分析研究
Sajjad Khaksar1, Mehdi Jafari-Oori2, Forogh Sarhangi2
1Student Research Committee, Baqiyatallah University of Medical Sciences, Tehran, Iran.
Asian/Pacific Island nursing journal
|January 29, 2025
概括
患有神经肌肉疾病 (NMDs) 的儿童,特别是脊髓肌肉缩 (SMA),经常经历睡眠障碍. 他们的父母报告显著的压力,突出需要有针对性的支持和干预措施,以改善整体家庭的福祉.
科学领域:
- 儿科神经学 儿科神经学
- 睡眠医学 睡眠医学
- 心理社会健康 心理健康
背景情况:
- 神经肌肉疾病 (NMDs) 包括影响运动神经元,神经肌肉结节和肌肉的疾病,导致软弱和运动问题.
- 脊柱肌缩 (SMA) 是一种常见的儿科NMD,严重程度各不相同.
- 这些情况对儿童的生活质量和护理人员负担有重大影响.
研究的目的:
- 评估被诊断患有NMD的儿童的睡眠质量,特别是SMA类型1,2,3的SMA.
- 评估NMD儿童父母所经历的压力水平.
主要方法:
- 一项描述性分析研究,涉及207名儿童 (年龄为1-14岁) 携带NMD在伊朗.
- 通过基于网络的问卷收集数据,评估儿童的睡眠习惯和父母的压力.
- 使用SPSS版本22的统计分析,阿尔法水平为0.05.05.
主要成果:
- 在SMA类型之间观察到睡眠质量的显著差异 (P=.02).
- 睡眠质量与住院时间 (r=0.234,P<.001) 和孩子的性别 (r=-0.140,P=.04) 相相关.
- 父母的压力水平很高 (平均得分95.73),但在NMD组之间没有显著差异 (P=.78).
结论:
- 睡眠障碍在儿科NMD中很常见,特别是SMA.
- 高的父母压力水平可能会影响照顾.
- 改善睡眠和管理家长压力的干预措施对于提高受影响儿童及其家人的福祉至关重要.
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