主观财务困境的自我报告决定因素:与德国癌症患者进行定性访谈研究
Andrea Züger1, Viktoria Mathies2, Katja Mehlis3
1Department of Medical Oncology, Section Translational Medical Ethics, National Center for Tumor Diseases (NCT), NCT Heidelberg, a partnership between DKFZ and Heidelberg University Hospital, Medical Faculty Heidelberg, Heidelberg University, Heidelberg, Germany andrea.zueger@histor.med.uni-giessen.de.
BMJ open
|January 29, 2025
概括
癌症患者的经济困境是复杂的,受到物质,社会,系统和个人因素的影响. 了解这些决定因素是开发更好的患者报告的财务福祉结果指标的关键.
科学领域:
- 在瘤学瘤学.
- 卫生经济学 卫生经济学
- 心理社会瘤学
背景情况:
- 癌症的诊断和治疗给患者带来了巨大的经济负担.
- 主观财务困境是一种多维现象,受各种成本类型和收入损失的影响.
- 全民医疗机构并不能完全减轻患者报告的财务影响.
研究的目的:
- 探索德国癌症患者主观财务困境的自我报告决定因素.
- 为开发一种新的德语患者报告结果指标 (PRO-M) 提供信息,用于癌症的财务影响.
- 了解物质,社会,系统和个人因素对财务福祉的相互作用.
主要方法:
- 使用半结构面试对18名癌症患者进行定性研究.
- 采访于2021年5月至12月期间在两个德国学术癌症中心进行.
- 使用定性内容分析分析数据,以确定金融困境的决定因素.
主要成果:
- 确定了影响主观财务困境的决定因素的多元构造.
- 物质决定因素包括储蓄,工资,住房,伴侣的就业,以及自付费用.
- 社会 (支持),系统 (管理,保险) 和内在的个人 (应对,态度) 因素也显著地影响了财务困境.
结论:
- 癌症患者的主观财务困难受到广泛的因素的影响,而不仅仅是物质方面.
- 社会,系统和个人决定因素对于全面了解财务负担至关重要.
- 这些发现支持创建一个强大的德语工具,以评估癌症对患者的财务影响.
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