在帕金森病护理中共同创建以人为中心的创意参与干预措施
Blanca T M Spee1,2,3, Thieme B Stap4,5, Marjoke Plijnaer6
1Department of Neurology, Radboud University Medical Centre, Donders Institute for Brain, Cognition and Behaviour, Centre of Expertise for Parkinson and Movement Disorders, Nijmegen, Netherlands.
Frontiers in psychology
|January 30, 2025
概括
这项研究共同设计了帕金森病 (PD) 患者的创意艺术治疗干预,创造了一个支持性的"创意游乐场"学习环境. 该干预强调参与者的自主权,并将个人叙述融入科学知识中,以提供量身定制的护理.
科学领域:
- 神经科学是一个神经科学.
- 艺术与健康 艺术与健康
- 医学实践 医学实践
背景情况:
- 基于艺术的干预措施对健康和福祉有显著的好处.
- 传统的医疗保健经常与帕金森病 (PD) 等疾病的多方面的影响作斗争.
- 建议将艺术整合到学习环境中,从设计到长期护理.
研究的目的:
- 倡导医疗实践和神经科学中的综合性方法.
- 为患有PD的个人共同设计创意艺术治疗干预.
- 建立一个PD特定的创意参与学习环境.
主要方法:
- 采用了基于参与式设计的研究方法.
- 14名患有PD的人与治疗师和研究人员在代设计周期中合作.
- 通过采访,小组反思和观察收集定性数据,并使用反射主题分析进行分析.
主要成果:
- 在一个"创意游乐场"环境中,开发了一个为期10周的创意参与干预.
- 参与者在治疗师的支持下,在媒体选择和创作活动中体验了自主权.
- 确定了干预框架的七个关键特征,包括结构,选择自由,环境,治疗师技能,PD考虑,财务和设计团队的责任.
结论:
- 已经建立了PD特定的创意艺术治疗干预作为创意参与学习环境的初步框架.
- 未来的研究将专注于评估干预的有效性和可扩展性.
- 参与者叙述被认为是有价值的科学知识,提高了护理相关性.
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