缩小门诊患者用抗癌化疗治疗的数字差距:对一个适应电子患者报告结果计划进行了回顾性定量和定性分析
Coralie Boiteau1, Natividad Alarcon1, Charlotte Joly1
1Department of Medical Oncology, Assistance Publique - Hôpitaux de Paris, Henri Mondor Teaching Hospital, Créteil, France, 1 Rue Gustave Eiffel, 94000.
概括
一个专门的支持计划旨在弥合癌症患者电子患者报告结果 (ePRO) 的数字沟. 然而,由于健康素养不佳,大多数患者未能充分使用ePRO应用程序.
科学领域:
- 数字健康数字健康
- 在瘤学瘤学.
- 卫生识字 卫生识字
背景情况:
- 电子患者报告结果 (ePRO) 在临床试验中提供了好处.
- 数字沟对公平的远程医疗服务提供了障碍.
研究的目的:
- 调查是否有专门的支持计划可以克服电子化疗在接受化疗的癌症患者使用ePRO的数字沟.
- 通过使用ePRO应用程序评估数字访问有限的患者所面临的挑战.
主要方法:
- 法国一组22名癌症门诊患者受到了数字沟的影响,他们使用了Onco'nect® ePRO应用程序.
- 一个支持计划提供了平板电脑,医疗保健专业人员的访问,培训和同行指导.
- 进行了半结构面试,以评估患者的经验和挑战.
主要成果:
- 只有45%的患者积极使用ePRO应用程序,23%的患者填写了75%以上的问卷.
- 尽管有支持计划,但很大一部分 (55%) 仍然是贫困用户.
- 不充分使用与健康素养和情绪反应不佳有关,而不仅仅是计算机技能或感知到的临床益处.
结论:
- 专门的支持计划可以增强一些患者的远程医疗采用.
- 然而,健康素养和情绪因素的重大挑战阻碍了数字分裂的癌症患者广泛使用ePRO.
- 解决健康素养问题对于在临床试验中公平实施ePRO至关重要.
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