亚洲的响应性癌症护理:必须承认和解决耻辱和痛苦
Ellie Bostwick Andres1, Louisa Poco1, Ishwarya Balasubramanian1
1Duke-NUS Medical School, Lien Centre for Palliative Care, 8 College Road, Level 4, Singapore, 169857, Singapore.
概括
癌症的耻辱和痛苦显著降低了亚洲晚期癌症患者如何感知响应性医疗保健的程度. 解决这些问题对于提高患者尊严,信息清晰度和参与决策至关重要.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者体验 患者体验
背景情况:
- 与癌症相关的耻辱和疼痛在晚期癌症患者中很普遍.
- 这些因素可能会对患者对医疗保健质量的看法产生负面影响.
研究的目的:
- 调查癌症相关的耻辱和疼痛对亚洲晚期癌症患者接受响应性护理的看法的影响.
主要方法:
- 亚洲八个国家的11家医院对2138名晚期癌症患者进行了调查.
- 利用小贴士来评估人们对尊严的看法,信息清晰度和参与决策,纠正报告偏见.
主要成果:
- 39%的患者感觉到癌症的耻辱;66%的人报告中度至严重的疼痛.
- 感知到的耻辱和痛苦与所有领域 (尊严,信息,决策) 的卫生系统响应性有负面关联.
- 为报告异质性进行调整后,这些负面关联被放大了.
结论:
- 癌症的耻辱和疼痛是普遍存在的,并显著减少了对亚洲晚期癌症患者的医疗保健的感知响应能力.
- 解决耻辱和痛苦是提高患者尊严,信息清晰度和共享决策的关键.
- 研究结果强调需要有针对性的干预措施,以加强瘤学中以患者为中心的护理.
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