改善英国关于可避免的围产期脑损伤的数据:对数据词典和咨询的审查
Jan W van der Scheer1, Victoria Komolafe2, Kirstin Webster3,4
1THIS Institute (The Healthcare Improvement Studies Institute), University of Cambridge, Strangeways Research Laboratory, Cambridge, CB1 8RN, UK. jan.vanderscheer@thisinstitute.cam.ac.uk.
Pediatric research
|January 30, 2025
概括
提高围产期脑损伤的数据质量至关重要. 目前英国的数据来源缺乏标准化和链接,阻碍了减少可避免的伤害和改善护理的努力.
科学领域:
- 围产期健康 围产期健康
- 新生儿护理 新生儿护理
- 公共卫生数据 公共卫生数据
背景情况:
- 高质量的数据对于理解围产期脑损伤流行病学和指导护理改进至关重要.
- 目前英国常规收集的数据来源不足以捕捉与脑损伤相关的基本信息.
- 需要评估现有数据源的适应性,以改善围产期脑损伤护理.
研究的目的:
- 为了识别在英国例行收集的数据源中捕获的与围产期脑损伤相关的数据项目.
- 确定必要的行动,以确保这些数据源适合改善护理的目的.
主要方法:
- 来自四个主要的英国围产期数据来源的数据词典的审查.
- 咨询了一个多学科专家组 (27名专业人员) 在新生儿/产妇护理,统计和临床疏忽方面.
主要成果:
- 没有一个单一的审查数据源全面捕捉所有相关的脑损伤数据项.
- 在共同的定义和跨源的持续数据链接方面存在重大差距.
- 确定的需求包括标准化可避免的围产期脑损伤的定义,以及改进数据捕获和链接.
结论:
- 英国各个来源之间有限的标准化和数据链接阻碍了使用数据来减少可避免的围产期脑损伤.
- 需要一个涉及医疗保健专业人员和家庭的共同设计的计划来增强数据的捕获和利用.
- 标准化定义,解决数据不一致性和改善数据链接对于进步至关重要.
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