患者报告信息的有效性:患者报告与注册表数据之间的一致率
Tomone Watanabe1,2, Yuichi Ichinose3,4,5, Tsutomu Toida6
1Division of Health Services Research, Institute for Cancer Control, National Cancer Center, 5-1-1, Tsukiji, Chuo-Ku, Tokyo, 104-0045, Japan. tomonwat@ncc.go.jp.
BMC health services research
|January 31, 2025
概括
患者报告的癌症阶段准确性较低 (49.9%),特别是在早期阶段. 基于医院的癌症注册表 (HBCR) 为准确的癌症分期提供了更可靠的数据.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 患者报告的结果
背景情况:
- 患者报告的临床数据的可靠性,特别是癌症阶段,需要进行彻底的调查.
- 越来越多地使用患者调查,但其与官方记录的一致性尚未完全确定.
研究的目的:
- 评估患者报告数据与医院癌症注册表 (HBCR) 信息之间的一致性.
- 确定影响患者报告癌症阶段准确性的因素.
主要方法:
- 一项涉及日本166家医院730名患者的研究将自我报告的人口统计和临床数据与HBCR记录进行了比较.
- 计算了协议率,后勤回归确定了准确报告癌症阶段的预测因素.
主要成果:
- 对年龄 (99.4%),性别 (99.8%) 和癌症部位 (> 90%) 观察到高度一致.
- 癌症阶段一致性仅为49.9%,而第四阶段患者的准确性更高 (68.4%).
- 年轻的患者 (75岁以下) 和患有特定癌症类型的患者更有可能报告准确的数据.
结论:
- 患者报告的癌症阶段数据表现出严重的不准确性.
- 癌症登记册是准确的癌症阶段信息的更可靠来源.
- 临床决策应优先考虑来自验证来源的数据,如癌症登记册.
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