原住民和托雷斯海峡岛民社区的经验和健康和医学研究的建议:一种混合方法研究
Felicity Collis1,2, Kade Booth1,2, Jamie Bryant1,2
1University of Newcastle, Newcastle, NSW.
The Medical journal of Australia
|February 2, 2025
概括
原住民和托雷斯海峡岛民社区希望对健康研究有更大的控制权,许多人报告了负面经历,尽管他们主张领导. 建议侧重于赋予社区权力,以指导他们自己的研究议程,以改善结果.
科学领域:
- 土著健康研究土著健康研究
- 基于社区的参与式研究
背景情况:
- 原住民和托雷斯海峡岛民社区长期以来一直主张在健康和医学研究方面控制和领导.
- 现有的研究结构和实践在历史上导致这些社区的负面经验.
研究的目的:
- 描述土著和托雷斯海峡岛民社区在健康和医学研究中的过程,定位和经验.
- 收集这些社区的建议,以改善未来的研究工作.
主要方法:
- 一个使用在线和纸质形式的横截面调查.
- 澳大利亚的土著和托雷斯海峡岛民卫生服务和社区控制的组织的国家代表参与其中.
- 一项33项混合方法调查探讨了社区对过去五年研究过程,定位和经验的看法,并提出了建议的开放式问题.
主要成果:
- 51名社区代表参加了会议,其中大多数 (73%) 报告了积极的研究经验.
- 超过一半 (65%) 拥有正式的治理流程,许多没有 (67%) 的人有兴趣建立它们.
- 基本的伦理原则包括社区利益共享 (88%),研究翻译 (73%),雇用土著人员 (73%),土著数据主权 (71%),和研究协议 (69%).
- 社区经常参与土著领导的研究 (76%),但在研究过程中经常被接近,对设计的投入有限.
- 充分的资源和资金对于社区领导他们自己的研究议程至关重要.
结论:
- 尽管倡导,土著和托雷斯海峡岛民社区继续面临健康和医学研究的挑战.
- 研究人员,资助机构和机构必须改革结构,以确保透明度和问责制.
- 赋予社区权力来指导和领导他们自己的健康研究议程对于积极的变化至关重要.
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