在儿科癌症护理中为兄弟姐妹提供心理社会支持的共同优先事项:价值权衡研究
Kathryn A Davis1, Samuel Lai1, Melissa A Alderfer2,3
1Department of Psychological & Brain Sciences, Boston University, Boston, Massachusetts, USA.
Pediatric blood & cancer
|February 3, 2025
概括
优先考虑癌症儿童的兄弟姐妹支持服务至关重要. 专家建议投资于以社区为基础的项目,特别是为丧亲兄弟姐妹或面临社会挑战的人,以提高可访问性和影响力.
科学领域:
- 儿科瘤学 儿科瘤学
- 心理社会支持 心理社会支持
- 医疗保健优先级的确定
背景情况:
- 癌症儿童兄弟姐妹的心理社会支持是标准的,但具体的服务需求尚不清楚.
- 有限的资源需要优先考虑兄弟姐妹的照顾,以最大限度地获益.
- 确定临床和研究优先事项对于有效的资源分配至关重要.
研究的目的:
- 确定和优先考虑兄弟姐妹支持服务的关键领域.
- 为癌症青少年的兄弟姐妹提供心理社会支持的资源分配提供指导.
- 了解有关兄弟姐妹支持优先事项的专家和实践经验观点.
主要方法:
- 采用了双轮的价值加权方法.
- 参与者包括兄弟姐妹专家:临床医生,研究人员,项目负责人和成年兄弟姐妹.
- 一个基于网络的问卷评估了资金分配的优先事项和理由.
主要成果:
- 总体资金分配表明需要在所有兄弟支持领域进行投资.
- 基于社区的兄弟姐妹支持因感知到的可访问性而获得了最高的资金优先级.
- 特别关注的是基于学校的支持和子群体,包括丧亲兄弟姐妹,接受积极治疗的人以及健康不利的社会决定因素的人.
结论:
- 兄弟姐妹支持专家和有实践经验的个人倡导全面投资兄弟姐妹支持.
- 以社区为基础的干预措施被强调为提高获得兄弟姐妹支持服务的关键战略.
- 确定优先级的努力可以为开发和实施有效的兄弟姐妹支持计划提供信息.
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