患者和家长的观点在一个学术类风湿病学过渡诊所
Rebecca S Overbury1, Devin Eddington2, Katherine Sward3
1Division of Rheumatology, Department of Internal Medicine, Adjunct Assistant Professor, Division of Pediatric Rheumatology, Department of Pediatrics, University of Utah, School of Medicine, 30 N Mario Capecchi Drive, Salt Lake City, UT 84112, United States.
Health care transitions
|February 3, 2025
概括
成功的医疗保健转型 (HCT) 需要使患者和家长的期望保持一致. 这项研究突出了人们对转移到成人护理的准备程度的差异,即使是在专门诊所.
科学领域:
- 类风湿病学 类风湿病学
- 儿科到成人医疗保健的过渡
- 以患者为中心的护理
背景情况:
- 对于患有慢性疾病的年轻人来说,医疗保健过渡 (HCT) 非常重要.
- 定义成功的HCT需要了解患者和家长的观点.
- 学术风湿病学过渡诊所旨在促进这一过程.
研究的目的:
- 定义成功的医疗保健转型 (HCT) 的组成部分.
- 评估患者和家长的满意度和准备在专业的风湿病学过渡诊所转移.
- 确定需要改进的HCT服务领域.
主要方法:
- 患者和家长完成了Mind the Gap和过渡反调查.
- 数据是作为一个更大的注册表的一部分在一个学术风湿病学过渡诊所收集的.
- 调查答案被分析并作为平均值呈现.
主要成果:
- 患者报告的满意度高于家长,预期有显著差异.
- 虽然超过50%的患者认为HCT课程内容得到了解决,但只有58%的患者和53%的家长觉得"非常准备好"进行转移.
- 父母比患者估值更多的变量,表明优先级不同.
结论:
- 整合患者和家长的观点对于定义成功的HCT至关重要.
- 患者和家长的期望以及对转移的准备程度之间存在差异.
- 专用过渡诊所可能无法完全解决所有HCT组件,需要持续改进.
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